Useful Links

We’ll achieve this through pioneering research, vital prevention activity and ensuring quality care and support for everyone living with heart disease.”

“The Foundation is the UK’s leading charity relating to children’s growth.

This site contains information of benefit to parents with a child who has a diagnosed or suspected growth problem, to people who have a growth problem and their families, and to people and medical professionals with an interest.

Our aim is to;

Support and encourage all persons (either children or adults) who have growth disorders, and their families, in any manner which is charitable in accordance with the law of the United Kingdom.
Promote and fund research into the causes and cure of growth disorders in children within the area of benefit and to publish the results of such research
Educate the public in general and workers in the medical profession in particular, in the problems and difficulties encountered by those with growth disorders.
Encourage the regular monitoring of growth and development criteria by medical professionals, at all levels, and facilitate such monitoring by identifying and making available on loan or for purchase equipment suitable for the purpose. ”
“CLAPA is the representative organisation for all people with and affected by cleft lip and/or palate in the UK.
We provide support and information to new parents, specialized bottles and teats for babies, activities for children and young people, advice on accessing treatment for adults, and volunteering opportunities as individuals or through our branches. We work closely with the specialist cleft teams and generic health professionals to ensure that people receive the best possible care. ”
“Contact a Family provides support, advice and information for families with disabled children, no matter what their condition or disability.

Contact a Family became a registered charity in 1979 and we have over 30 years of experience of working with families with disabled children.”
Healthtalkonline is the award-winning website of the DIPEx charity and replaces the website formerly at dipex.org. Healthtalkonline lets you share in more than 2,000 people’s experiences of health and illness. You can watch or listen to videos of the interviews, read about people’s experiences and find reliable information about conditions, treatment choices and support.
GEEPS is an international network of families and friends of children born with abdominal abnormalities.
The Miscarriage Association is a registered national charity in England & Wales (no. 1076829) and in Scotland (no. SC039790) and a company limited by guarantee (no. 3779123) , working across England, Northern Ireland, Scotland and Wales. It was founded in 1982 by a group of people who had experienced miscarriage and we continue to offer support and information to anyone affected by the loss of a baby in pregnancy, to raise awareness and to promote good practice in medical care.
The RGA is a UK based charity that provides vital information and support to improve the quality of life for persons of restricted growth (dwarfism), and their families.
“Sands is an organisation which can offer you support when your baby dies during pregnancy or after birth.

The death of a baby is a devastating experience. The effects of grief can be overwhelming and parents, their families and friends can be left feeling dazed, disorientated, isolated and exhausted.

It can be hard to take in information, to make decisions or to imagine how you are going to cope.

At Sands there are people who understand what it’s like because many of us have been through this experience ourselves, and we are here to help offer support and information when you need it. ”
“The Fetal Medicine Foundation is a Registered Charity that aims to improve the health of pregnant women and their babies through research and training in fetal medicine.

The Foundation, with the support of an international group of experts, has introduced an educational programme both for healthcare professionals and parents and a series of certificates of competence in different aspects of fetal medicine.”
ARC provides non-directive support and information to parents before, during and after prenatal testing.
“Tiny Tickers is concerned with improving the care of babies with congenital heart disease, before birth.

We are an independent, national charity, based in the UK.
Our Trustees are concerned parents, supported by medical experts in the UK and Europe.”

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